Uncommon Strength Campaign Unites and Celebrates the Courage and Resilience of People Living with Rare Diseases

Today we launched Uncommon Strength, a global campaign to raise awareness of rare diseases through the celebration of the extraordinary resilience and inner strength of those impacted by these diseases. Uncommon Strength supports global rare disease communities, including those impacted by atypical hemolytic uremic syndrome (aHUS), paroxysmal nocturnal hemoglobinuria (PNH), hypophosphatasia (HPP), and lysosomal acid lipase deficiency (LAL-D) with educational information as well as interactive social media elements to unite the community.

People impacted by rare diseases, including patients, caregivers, and loved ones, are invited to visit www.UncommonStrength.com to:

  • Create a personal aHUS, PNH, HPP, LAL-D, or rare disease “hero avatar” to show their unique courage, strength, and perseverance, and support the rare disease community.
  • Share custom hero avatars over social media or e-mail to help generate a broader conversation about rare diseases and inspire people across the globe to learn more and get involved in awareness efforts.
  • Update their personal Facebook and Twitter profile pictures with a customized photo filter to spread the word about aHUS, PNH, HPP, LAL-D, or rare diseases in general.