Real Stories of Living With PNH

Bill

Diagnosed with PNH at 28 years old

In 1985, Bill had already been living with aplastic anemia for 10 years when chronic bouts of fatigue during exercise landed him in the hospital, where he was diagnosed with paroxysmal nocturnal hemoglobinuria (PNH).

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Joe

Diagnosed with PNH at 24 years old

Joe was completing his Master’s degree, engaged to be married, and on his way to becoming a professional mixed martial arts competitor when the symptoms began: unexplained fatigue, dark urine, back and stomach pain.

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Lisa

Diagnosed with PNH at 34 years old

In 2003, Lisa was living in Canada when she began to develop large bruises on her legs that would not go away. Concerned, she visited her doctor, who performed several rounds of blood work, none of which gave them an answer.

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Ruthie

Diagnosed with PNH at 28 years old

Ruthie was a typical college senior at the University of Georgia in 1996 when she began experiencing chronic fatigue and frequent headaches.

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Victor

Diagnosed with PNH at 27 years old

Victor worked in the concert security industry and was planning a future with his fiancée when he started experiencing unexplained bruising, fatigue, and abdominal pain.

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