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THERE ARE GIFTS NMOSD HAS GIVEN ME THAT, AS TRAGIC AS IT’S BEEN TO BE DIAGNOSED WITH A RARE DISEASE, I WOULDN’T CHANGE IT FOR THE WORLD, BECAUSE WHEN YOU’RE DIAGNOSED WITH SOMETHING LIKE THIS IT MAKES YOU APPRECIATE THINGS THAT WE ALL TAKE FOR GRANTED.” 

Chelsey

LIVING WITH NMOSD

In 2009, Chelsey woke up with severe eye pain and noticed that her eyesight had been significantly impacted. Prior to this, Chelsey had spent nearly a year visiting different specialists to identify the cause of the symptoms she had been experiencing: vomiting, numbness, tingling in her limbs, headaches, and disabling fatigue. After being admitted to the hospital for the eye pain, Chelsey was diagnosed with multiple sclerosis (MS). 

During the 10 years that followed, Chelsey continued to experience those symptoms and new ones, along with 10 episodes of optic neuritis. She began to wonder if she truly had MS or if there had been a mistake. In early 2019, after spending a week in the hospital, Chelsey woke up with eye pain that was unmistakable. Her neurologist began to explore neuromyelitis optica spectrum disorder (NMOSD), and formally diagnosed her after a series of tests and scans.