Maureen & Lauren, diagnosed with LAL-D at 8 and 12 years old

MAUREEN & LAUREN
LIVING WITH LAL-D

REAL STORIES

Real Stories of Living With LAL-D

 
Albie, diagnosed with LAL-D as an infant, with his mother

Albie

Diagnosed with LAL-D as an infant

When Albie was born, his mom, Charlotte, said that he was, “absolutely fine. Everything was fine for about two weeks.”

HEAR HIS STORY
Maureen & Lauren, diagnosed with LAL-D at 8 and 12 years old, with their parents and brother

Maureen & Lauren

Diagnosed with LAL-D at 8 and 12 years old

Lauren was in the first grade when she became ill with persistent abdominal symptoms.

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The Trendys, diagnosed at 17, 14, 11, and 9 with LAL-D, with their parents

The Trendy Family

Diagnosed with LAL-D

When two-and-a-half-year-old Brendan was found to have elevated liver enzymes, his parents never imagined it was the first sign that all four of their sons were suffering from an ultra-rare disease.

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Tristan, diagnosed with LAL-D at 5 years old

Tristan

Diagnosed with LAL-D at 5 years old

Tristan was almost five years old when his parents, Holly and Steve, took him to the pediatrician because of his enlarged abdomen and persistent issues with constipation.

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