ADVOCACY

North America

• aHUS Canada
  Nature of support: Grant supporting initiatives of the organization
• Aplastic Anemia Myelodysplasia Association of Canada
  Nature of support: Sponsorship of the Spring meeting
• Aplastic Anemia & MDS International Foundation (AA-MDSIF)
  Nature of support: Grants supporting Foundation’s annual patient and family conference and other educational initiatives for people affected by PNH
• Canadian Association of PNH Patients
  Nature of support: Grant supporting initiatives of the organization
• Canadian Organization for Rare Disorders (CORD)
  Nature of support: Grants supporting various initiatives including Fall 2014 Conference, CORD Consultation on Canadian Framework for Access to Rare Disease Therapies, forums for patients and the rare disease community to raise awareness of their capabilities
• The Atypical HUS Foundation
  Nature of support: Unrestricted grant supporting the Foundation’s educational outreach, events to raise disease awareness and strengthen the organization’s core capacity
• Guthy-Jackson Charitable Foundation
  Nature of support: Sponsorship of Industry Council
• Kidney Foundation of Canada
  Nature of support: Grant for regional event to support Kidney Foundation of Canada, grant to support Hope Affair Gala
• The Magic Foundation
  Nature of support: Grant support for National Patient Conference
• Myasthenia Gravis Foundation of America
  Nature of support: Grant for patient meeting
• National Kidney Foundation
  Nature of support: Grant for NKF’s Patient Help Line and the NKF Cares web page on kidney.org
• National Organization for Rare Disorders (NORD)
  Nature of support: Grants supporting regional educational meetings for PNH and aHUS patients and their families
• The Network of Rare Blood Disorder Organizations – Alberta Chapter
  Nature of support: Grant supporting 2013 patient education day
• PNH Foundation
  Nature of support: Grant supporting Foundation’s annual PNH Walk, which promotes disease awareness and raises funds to support PNH research
• Rare Disease Legislative Advocates
  Nature of support: Grant support for RDLA’s 2014-2015 legislative briefings, legislative conferences and gala event
• Soft Bones and Soft Bones Canada
  Nature of support: Grant to support patient meetings, HPP Awareness Day Activities, and educational materials
• Wilson Disease Association
  Nature of support: Grant to support Wilson Disease community awareness and education