Soraya Bekkali
SVP, EUCAN and International Business
Delphine brings extensive expertise in corporate affairs, policy engagement, patient advocacy, access strategy, strategic planning, and building high-performing teams. She joins from MSD, where she served as Associate Vice President, Sustainable Access Solutions within the Global Market Access organization.
Prior to MSD, Delphine held several senior leadership positions at Biogen and earlier in her career, she led European affairs and patient advocacy initiatives at LEEM, the French pharmaceutical industry association.
Throughout her career, Delphine has been driven by a commitment to improving outcomes for patients and helping healthcare systems sustainably adopt innovation. She has worked closely with patient communities across multiple therapeutic areas, including rare diseases, and understands the critical role that advocacy, policy and stakeholder partnerships play in accelerating diagnosis, access and support for patients and their families.
Article • September 22, 2026
Living with a rare disease is inherently inequitable. More than 400 million people worldwide live with a rare disease, yet in many countries, it can take years to receive a diagnosis.1 Even once a diagnosis is confirmed, fewer than 10% of known rare diseases have an approved treatment.1 People living with rare diseases face inconsistent access to diagnostics, specialist care and treatments. These disparities are amplified in rural and lower-resource settings. The result is a persistent global gap between what is scientifically possible and what is practically accessible.
Thought Leadership • August 19, 2026
As Head of Development, Regulatory and Safety at Alexion, Gianluca Pirozzi channels his life’s experience with rare disease to inform his work at Alexion, ensuring clinical programmes are fueled by a patient-focused mindset.
Data Science and AI • August 13, 2026
More than 10,000 rare diseases are known today, yet the path to diagnosis remains one of
medicine’s most complex challenges. Symptoms are often non-specific, allowing rare
conditions to hide in plain sight, especially when physicians may encounter them perhaps
once or twice in a career, if at all.
Thought Leadership • August 12, 2026
More than 10,000 rare diseases have been identified, yet fewer than 10% have an approved treatment available. For many patients and families, the urgency is compounded by rapidly progressive disease, long diagnostic journeys and limited therapeutic options.
Research and Development • August 12, 2026
Building on a legacy in complement science, we are advancing a new era of medicines focused on precision, specificity and improved outcomes for patients.
Research and Development • July 16, 2026
Genomics, the science of how genes function and interact, is helping shape how rare diseases are understood and treated. With approximately 80% of rare diseases believed to have a genetic cause, genomic medicine for rare diseases may support more precise approaches that aim to address disease at its genetic source. This includes innovation across gene therapy, with the aim of expanding options for patients with rare diseases.
Health Equity • May 21, 2026
Alexion’s leadership in rare disease is driven by the many individuals whose expertise, creativity and tenacity fuel our commitment to advancing innovative science.
Article • May 11, 2026
Tina’s Big Trip is a heartfelt book that follow two sisters preparing for a journey to Italy as their family navigates the unseen complexities of rare disease.
Article • February 03, 2026
Rare Disease Day unites communities to drive strategies, funding, diagnosis and treatment, connecting local and global efforts for earlier, equitable care.
Clinical Trials • October 28, 2025
Studying a rare disease often involves working with fragmented information, much like piecing together scattered pages of different books, each offering part of the story but rarely forming a complete picture. Researchers face this challenge due to small, often underdiagnosed, patient populations and limited understanding of how these diseases progress over time.
Veeva ID: GL/ALL/0121