Legal Statement

Alexion Pharmaceuticals, Inc. and its affiliated companies (together, “Alexion”, “we”, or “the Company”) provide this website as a source of general information about the Company. This website is linked to other websites and applications for mobile devices (“Applications”) provided by Alexion, which together with this website shall be referred to in this statement as the “Alexion Sites” or “Sites.”

PLEASE READ THIS LEGAL STATEMENT CAREFULLY BEFORE USING THE SITES. THIS STATEMENT INCLUDES:

  • TERMS OF USE
  • PRIVACY NOTICE
  • GLOBAL PRIVACY PORTAL

BY USING THE SITES, YOU SIGNIFY YOUR ASSENT TO THESE TERMS. IF YOU DO NOT AGREE TO THESE TERMS, PLEASE DO NOT USE THE SITES.

Alexion has made reasonable efforts to ensure that information is complete and accurate when posted. However, Alexion makes no warranties or representations as to the completeness or accuracy of the information presented. Further, Alexion does not undertake any obligation to update any information that may change after posting.

The medical information contained on the Sites is intended for informational purposes only. It is not a substitute for actual medical care. Persons requiring diagnosis or treatment or with questions specific to a single individual are urged to contact their local healthcare provider.

 

TERMS OF USE

Investors

The Alexion Sites contain forward-looking statements regarding Alexions operations, financial condition, prospects, products, services, and strategies. Such forward-looking statements are based on estimates and projections about our industry, managements beliefs, and certain assumptions made by our management. Such statements are subject to certain factors which may cause Alexions plans or results to differ from those expected, including, without limitation, decisions of regulatory authorities regarding marketing approval or material limitations on marketing of Alexion’s products; delays in arranging satisfactory manufacturing capability and establishing commercial infrastructure; the possibility that results of clinical trials are not predictive of safety and efficacy results of Alexion’s products in broader patient populations in the disease studied or other diseases; the risk that acquisitions will not result in short-term or long-term benefits; the possibility that current results of commercialization are not predictive of future rates of commercialization; the risk that third parties will not agree to license any necessary intellectual property to Alexion on reasonable terms or at all; the risk that third party payors (including governmental agencies) will not reimburse for the use of Alexion’s products at acceptable rates or at all; the risk that estimates regarding the number of patients is inaccurate; our ability to successfully complete preclinical or clinical development of our products; our ability to expand the use of our product in other indications; and other risks set forth from time to time in Alexions filings with the Securities and Exchange Commission. Alexion undertakes no obligation to update any of these forward-looking statements.

Restrictions on use of materials

The Sites are owned and operated by Alexion Pharmaceuticals, Inc. The contents of the Alexion Sites, such as text, graphics, images, logos, button icons, software and other material (the Material) are protected under copyright, trademark and other laws. You may not copy, reproduce, republish, modify, upload, post, transmit, or distribute Material in any way, except that you may download one copy of the Material on any single computer for your personal use only, provided you keep intact all copyright and other proprietary notices. Use of the Material for any other purpose is a violation of Alexions copyright and other proprietary rights. For purposes of these Terms of Use, the use of the Material or a modification of the Material on any other Site or networked computer environment is prohibited unless permission is obtained in writing from Alexion. You may not copy or adapt any Material we use to generate the web pages. This code is also protected by copyright and other laws.

Submissions

Alexion appreciates hearing from interested parties and welcomes your comments regarding Alexions products or technologies, including Alexions on-line services. However, Alexions company policy does not allow it to accept or consider confidential creative ideas, suggestions, inventions, note drawings, concepts, materials or other information (collectively Information) other than those it has specifically requested in writing. If you nonetheless send us any Information, it shall be deemed, and shall remain, the property of Alexion. None of the Information shall be subject to any obligation of confidence on the part of Alexion and Alexion shall not be liable for any use or disclosure of any Information. Without limitation of the foregoing, Alexion shall exclusively own all now known or hereafter existing rights to the Information and shall be entitled to unrestricted use of the Information for any purpose whatsoever, commercial or otherwise, without compensation to the provider of the Information.

You may use the Sites for lawful purposes. Alexion specifically prohibits use of the Sites for, and you agree not to: (i) use any device, software or routine to interfere or attempt to interfere with the proper working of the Sites; (ii) take any action that imposes an unreasonably large load on the Site’s infrastructure; (iii) decipher, decompile, disassemble, or reverse engineer any of the software comprising or in any way making up any part of the Sites, or attempt to do the same.

Jurisdictional issues

Each website and its contents are intended for users in the jurisdiction indicated on each website and intended to comply with the laws and regulations in the jurisdiction indicated on the website, without regard to the conflict of law provisions thereof. Alexion makes no representation that Material is appropriate or available for use in other locations. By continuing use of a website, you are affirmatively consenting that your use hereof shall be governed by the laws applicable in the jurisdiction indicated on the website, excluding their conflict of law provisions. Those who choose to access a website from other locations do so on their own initiative and are responsible for compliance with local or national laws, if and to the extent local or national laws are applicable. Alexion reserves the right to limit provision of any product or service to any person, geographic region or jurisdiction and to limit the products or services that we provide.

Termination

This agreement is effective until terminated by either party. You may terminate this agreement at any time by destroying all materials obtained from any and all Alexion Site(s) and all related documentation and all copies and installations thereof, whether made under the terms of this agreement or otherwise. This agreement will terminate immediately without notice from Alexion if in Alexions sole discretion you fail to comply with any term or provision of this Agreement. Upon termination, you must destroy all materials obtained from this Site and any and all other Alexion Site(s) and all copies thereof, whether made under the terms of this agreement or otherwise. Alexion reserves the right to alter or delete material from these Sites at any time and may, at any time, revise the terms of this Agreement by updating this posting. You are bound by any such revision and should therefore periodically visit this page to review the then current terms of this Agreement. The terms of use set forth for the Sites shall survive such termination, including without limitation the paragraphs headed Investors,” Restrictions on Use of Materials, Submissions, Jurisdictional Issues, Termination, and Disclaimer.

Severability

If any of these Terms are held invalid or unenforceable by any court of competent jurisdiction, the other provisions of these Terms shall remain in full force and effect. If any provision of these Terms are held invalid or unenforceable only in part or degree, the remainder will continue in full force and effect to the extent not held invalid or unenforceable.

Disclaimer

The Sites are for informational purposes only. You should not use the information contained herein for diagnosing a health or fitness problem or disease. Alexion makes no warranties or representations as to its accuracy. Alexion assumes no liability or responsibility for any errors or omissions in the content of Sites. Alexion has not reviewed all of the sites that may be linked to its Sites, and is not responsible for the content of any off-Site pages or any other sites linked to these Sites. Your access to any off-Site pages is at your own risk. THE MATERIALS IN THESE SITES ARE PROVIDED AS IS AND WITHOUT WARRANTIES OF ANY KIND EITHER EXPRESS OR IMPLIED. TO THE FULLEST EXTENT PERMISSIBLE PURSUANT TO APPLICABLE LAW, ALEXION DISCLAIMS ALL WARRANTIES, EXPRESS OR IMPLIED, INCLUDING, BUT NOT LIMITED TO, IMPLIED WARRANTIES OF MERCHANTABILITY AND FITNESS FOR A PARTICULAR PURPOSE. ALEXION DOES NOT WARRANT THAT THE FUNCTIONS CONTAINED IN THE MATERIALS WILL BE UNINTERRUPTED OR ERROR-FREE, THAT DEFECTS WILL BE CORRECTED, OR THAT THIS SITE OR THE SERVER THAT MAKES IT AVAILABLE ARE FREE OF VIRUSES OR OTHER HARMFUL COMPONENTS. ALEXION DOES NOT WARRANT OR MAKE ANY REPRESENTATIONS REGARDING THE USE OR THE RESULTS OF THE USE OF THE MATERIALS IN THESE SITES IN TERMS OF THEIR CORRECTNESS, ACCURACY, OR RELIABILITY. IN NO EVENT SHALL ALEXION BE LIABLE FOR ANY INDIRECT, SPECIAL, INCIDENTAL OR CONSEQUENTIAL DAMAGES, UNDER ANY LEGAL THEORY, ARISING OUT OF OR IN CONNECTION WITH THIS AGREEMENT, YOUR ABILITY OR INABILITY TO USE THE SITES OR ANY INFORMATION CONTAINED THEREIN.

Trademark and copyright information

©Copyright 1998-2020 Alexion Pharmaceuticals, Inc. This Alexion website is protected by copyright, including images, layout, and text. All rights reserved.

ALEXION, the ALEXION logo, DEDICATED TO RARE DISEASES, EVERY DAY WITH HPP, KANUMA, the KANUMA logo, ONESOURCE, ONESOURCE logo, PNHSOURCE, PNH REGISTRY, RXPEDITE, SOLIRIS, STRENSIQ and ULTOMIRIS, whether or not appearing in bold typeface or with the trademark symbol ®, are trademarks of Alexion Pharmaceuticals, Inc. Alexion’s trademarks are registered in the United States, European Union, and in other countries worldwide and may not be used without permission. Use, reproduction, copying, or redistribution of these trademarks is prohibited.

The use or misuse of these trademarks, copyrights, or other materials is expressly prohibited and may be in violation of copyright law, trademark law, communications regulations and statutes, and other laws, statutes, and/or regulations.

 

ALEXION PRIVACY NOTICE

Translations of this Privacy Notice are available in FrenchSpanishItalianPortuguese, and German.

You can review our Supplemental Privacy Notice for California Residents, here.

At Alexion, our mission is to transform the lives of people affected by rare and devastating diseases by continuously innovating and creating meaningful value in all that we do. As stewards of data about patients who use our medicines, their caregivers, and the healthcare professionals who serve them, we believe that respecting and protecting Personal Data is a key part of delivering lifesaving medicines. We are committed to handling Personal Data fairly and transparently in support of our mission and in accordance with the laws and regulations that govern data protection and privacy.

Alexion Pharmaceuticals, Inc. is part of a global group of AstraZeneca companies ("AstraZeneca"). This Privacy Notice applies to Alexion Pharmaceuticals, Inc. and its affiliates (collectively, "Alexion," "we," "us") in respect of its processing of personal data ("Personal Data"). For information about AstraZeneca's global privacy standards and practices, you may read the AstraZeneca global privacy notice here

In this Privacy Notice, Alexion describes our general practices regarding how we collect, use, and disclose Personal Data of patients, caregivers, and healthcare professionals—as well as other individuals with whom we interact, for example, research study participants, researchers, visitors to our online services, job applicants, service providers, business partners, and investors. Personal Data does not include, and this Privacy Notice does not apply to, aggregate information or information that has been de-identified or anonymized in accordance with applicable law.

Both Alexion and AstraZeneca could act either as independent data controllers or joint controllers for processing of Personal Data. The roles of either Alexion or AstraZeneca will be clearly identified as controller or joint-controller in any specific privacy notice complementing this Privacy Notice (e.g. selection and recruitment; talent acquisition; safety and adverse events; healthcare professionals engagement, etc.), which are not in scope of this Privacy Notice. Any specific privacy notice will be delivered to the data subjects for that specific purpose(s). 

If you are a healthcare professional ("HCP"), both this Privacy Notice and the HCP privacy notice specific to your jurisdiction (if any) apply to you. You can access our HCP privacy notices here.

In this Privacy Notice, you’ll learn about the following:

How We Collect Personal Data
The Types of Personal Data We Process
Why We Process Your Personal Data
How We Share Your Personal Data
Cookies and Other Tracking Technologies
Data Analytics
Interest-Based Advertising
Your Rights and Choices
International Transfers
Data Security
Data Retention
Privacy Statement for Minors
Third-Party Resources
Updates to this Privacy Notice
How to Contact Us

 

HOW WE COLLECT PERSONAL DATA

We collect Personal Data in a variety of ways, including:

  • Directly from you, such as through an online webform, when you register for an event, when you enroll in our Alexion programs, when you collaborate with us for research, when you submit a job application, when we communicate with each other, or when you otherwise provide us with your information (e.g., provide a business card).
  • From third parties, such as HCPs, patients, references and referral sources, patient advocacy groups, study sites, and data aggregators and management systems.
  • From public sources, such as public databases (e.g., public transparency reporting records), public websites and search results, and publicly available social media pages (e.g., LinkedIn).
  • Automatically, such as through cookies or other technologies that provide us with information about your use of our online services.
 

THE TYPES OF PERSONAL DATA WE PROCESS

The types of Personal Data we collect, access, disclose, store, use, or otherwise process (“process”) include:

  • Identifiers and contact information, such as name, address, email address, phone number, date of birth, and other similar identifiers and contact information.
  • Health and medical information, such as diseases, symptoms, complications, therapies, medications, outcomes, barriers to access, insurance information, dates of service, and an Alexion-generated patient identification number.
  • Mental and physical characteristics, such as level of fatigue, weight, and slurred speech.
  • Professional or employment-related information, such as employer, title, specialty, employment history, awards and honors, membership in professional organizations, speaking engagements, and affiliations with patient advocacy organizations.
  • Job candidates, selection and recruitment related information, such as name; addresses; email addresses; telephone numbers; social security number; government issued identification number; date of birth; date(s) of hire; title; position(s); work location(s); interview information and notes; employment history; employee termination information; race or ethnic origin; gender; medical certificate issued by accredited and specialized medical professionals, credit history; criminal history; immigration status and other appropriate information, i.e. work permit status; and employer name for contingent/consultant worker.
  • Audio or visual information, such as video recordings if you visit our locations or audio or video recordings of you describing your experience as a patient, caregiver, or HCP.
  • Education information, such as level of education attained, institutions attended, majors and areas of study, and grades.
  • System Account information, such as username and password.
  • Financial information, such as bank account information and amounts paid.
  • Demographic information, such as age, date of birth, and gender.
  • Inferences, such as notes about preferences and aptitudes.
  • Opinions or statements, such as publicly available social media posts containing adverse events or product quality and opinions on Alexion, its products, and indications in public news reports.
  • Internet or other electronic network activity information, such as IP address, country or geographic region location, browser type, device type, operating system, dates, and times you access our services, browsing history, and other information about your interactions with our online services. We collect such information through cookies and other tracking technologies. Please see our “Cookies and Other Tracking Technologies” section below.

In addition to the above, we will collect any other information that you provide to us, such as stories about a doctor’s visit, questions related to our diseases and therapies, research interests, and cover letters.

 

WHY WE PROCESS YOUR PERSONAL DATA

We process Personal Data for the business and commercial purposes described in the bullet points below. The laws of certain jurisdictions require that we have a “legal basis” for our processing of Personal Data; where those law apply, we have identified our legal bases in the first-line bullet points, and those legal bases apply only for those jurisdictions.

  • As necessary for our legitimate interests in:
    • Operating and overseeing our business, for example, supporting quality and safety, enabling ethical and compliant business operations, conducting audits and investigations, managing your accounts, providing our products and services, improving and developing new products and services, researching market trends, monitoring service providers, analyzing potential talent, and otherwise administering our business (e.g., providing key functions like human resources, finance, accounting, IT, security, legal, and compliance). For these purposes, we may use any of the types of Personal Data described above, for example, identifiers and contact information, certain health and medical information, education information, and video and audio information (as part of monitoring our compliance with applicable laws and internet or other electronic network activity information to monitor online safety).
    • Understanding customer and stakeholder opinions, for example, identifying business opportunities and gathering and analyzing stakeholder needs, preferences, sentiments, and opinions on Alexion, its products, and indications. For these purposes, we may use identifiers and contact information and opinions or statements.
    • Communicating with you, for example, responding to your inquiries (including unsolicited requests for information about our indications or scientific information), providing you with information we think may interest you, contacting you for your input, and maintaining records of our interactions with you. For these purposes, we may use any of the types of Personal Data described above, for example, identifiers and contact information.
    • Promoting our business and research, for example, carrying out marketing and sales activities, measuring the effectiveness of our promotional campaigns, and targeting advertisements on third-party services. For these purposes, we may use any of the types of Personal Data described above, for example, identifiers and contact information, professional or employment-related information, inferences, demographic information, and internet or other electronic network activity information.
    • Personalizing our interactions with you, for example, understanding your professional and personal interests and adapting our services to your needs and preferences. For these purposes, we may use any of the types of Personal Data described above, for example, identifiers and contact information, professional or employment-related information, inferences, demographic information, and internet or other electronic network activity information.
    • Protecting rights and interests, for example, protecting the health, safety, and security of Alexion, its employees, patients, caregivers, HCPs, and the general public; enforcing our legal rights; and pursuing remedies or otherwise taking steps to limit damages and liabilities. For these purposes, we may use any of the types of Personal Data described above, for example, identifiers and contact information to investigate violations of our contracts or health and medical information in the event of an emergency.
    • Identifying potential talent, for example, reviewing information to identify candidates for our talent pipeline via online or public sources. For these purposes, we may use any of the types of Personal Data described above, for example, identifiers and contact information, professional or employment-related information, education information, and demographic information.
  • Pursuant to a contract or pre-entering a contract, for example, negotiating contracts in advance of entering into one and honoring our contractual commitments, such as:
    • Engaging you to provide services on our behalf or as a business partner, for example, engaging with services providers that provide market research services or working with research collaborators. For these purposes, we may use any of the types of Personal Data described above, for example, identifiers and contact information and financial information.
    • Providing patient support services, for example, supporting you, assisting you with claims and authorizations, and connecting you with other resources or organizations. For these purposes, we may use any of the types of Personal Data described above, for example, identifiers and contact information, health and medical information, and mental and physical characteristics.
    • Providing grants, sponsorships, and other opportunities, for example, offering our access to medicines programs and sponsoring and participating in research, events, and conferences. For these purposes, we may use any of the types of Personal Data described above, for example, identifiers and contact information, health and medical information, mental and physical characteristics, professional or employment-related information, education information, and demographic information.
  • With your consent, or if you are a Minor (defined in the “Privacy Statement for Minors” section below), with your or your parent’s or legal guardian’s consent, in order to:
    • Send promotional materials, for example, if you are a patient who enrolls in one of our patient support programs and you have consented to promotional communications. For these purposes, we may use any of the types of Personal Data described above, for example, identifiers and contact information.
    • Evaluate job candidates, for example, reviewing your job applications, talking to references, and reviewing information to identify candidates for our talent pipeline. For these purposes, we may use any of the types of Personal Data described above, for example, identifiers and contact information, professional or employment-related information, education information, and demographic information, medical certificate as required by local applicable employment law.
    • Share your story with others, for example, when we share patient stories to help our employees and others better understand our patients and their journeys. For these purposes, we may use any of the types of Personal Data described above, for example, identifiers and contact information and audio and visual information.
    • Collect information from or about you, for example, when we are legally required to obtain your consent before collecting certain Personal Data (e.g., sensitive information, such as health and medical information and mental and physical characteristics) about you.

As required by law, for example, by:

    • Monitoring pharmacovigilance and product safety, quality, and complaints for ensuring high standards of quality and safety of health care and of medicinal products, for example, providing infrastructure to intake adverse event reports and complaints, maintaining records of such events and complaints, appropriately responding to reports and complaints, and providing appropriate information to regulators. For these purposes, we may use any of the types of Personal Data described above, for example, identifiers and contact information, health and medical information, and mental and physical characteristics.
    • Certificate of Vaccination (CoV), for safety and managing purposes related to the use of Alexion products, as legally required, we may be obliged to collect a certificate of vaccination for which we create a corresponding patient identification number. For these purposes, we may use limited types of Personal Data described above, for example, the patient's date of birth and prescribed medication linked to the certificate of vaccination, as well as for health professionals, their names and email address, when submitting the e-COV. Please read this specific privacy notice linked here: GDPR; Global, Asia
    • Complying with transparency requirements, for example, monitoring payments and other transfers of value. For these purposes, we may use any of the types of Personal Data described above, for example, identifiers and contact information, professional or employment-related information, and financial information.
    • Monitoring fraud and abuse, for example, investigating potential claims of fraud and abuse. For these purposes, we may use any of the types of Personal Data described above, for example, financial information.
    • Responding to legal process, for example, complying with legal requests from administrative or judicial authorities and complying with subpoenas. For these purposes, we may use any of the types of Personal Data described above, for example, identifiers and contact information, professional or employment-related information, and financial information.

Due to the nature of our business, Alexion is subject to a number of legal requirements. As a result, Alexion may be required to process Personal Data, for example, sensitive Personal Data (including health and medical information and mental and physical characteristics), in order to meet these obligations. We will process your Personal Data in accordance with our legal obligations and in a way that protects your privacy to the extent possible, for example, pseudonymizing information, while still complying with our legal obligations.

 

HOW WE SHARE YOUR PERSONAL DATA

Alexion may share your Personal Data in the following ways:

  • With vendors and service providers who work on Alexion’s behalf to provide certain services, for example, entities that provide us with research services, data storage, data analysis and processing, distribution, patient support, IT and data security, and legal services. When we share Personal Data with vendors and service providers, we endeavor to require that they keep your Personal Data confidential and secure and process it for limited and specified purposes.
  • To Alexion affiliates and subsidiaries, for example, current and future companies within the Alexion family of companies. You can find the list of all our affiliates and subsidiaries here.
  • With the AstraZeneca group of companies linked here. For information about AstraZeneca's global privacy standards and practices, you may read the AstraZeneca global privacy notice here
  • With business partners, for example, researchers with whom we collaborate, companies with whom we co-develop a therapy, companies with whom we co-promote a product or third-party companies managing our in-countries operations.
  • In connection with a business transfer, for example, as part of a sale, assignment, or transfer of an Alexion business or assets, or acquisition of or merger with another entity. We may also share your Personal Data in contemplation of such transactions, such as during due diligence.
  • In response to requests from government or law enforcement agencies or where required or permitted by applicable laws, court orders, or government regulations, for example, in response to a subpoena or regulatory inquiry.
  • To protect rights and interests, for example, when needed for corporate audits, to investigate or respond to a complaint or threat, or to exercise our legal rights.
  • With your consent, for example, when you agree that we can share your Personal Data with an HCP.
 

COOKIES AND OTHER TRACKING TECHNOLOGIES

We automatically process certain types of information whenever you interact with us on our online services and in some emails we may send to you. Automatic technologies we use may include, for example, cookies and web beacons.

  • Cookies: A cookie is a piece of information that is placed on your computer when you access certain websites. The cookie uniquely identifies your browser to the server. Most web browsers are set up to accept cookies, though you can reset your browser to refuse all cookies or to indicate when a cookie is being sent. Note, however, that some portions of our websites may not work properly if you refuse cookies.
  • Web Beacons: On certain websites or emails, Alexion may utilize a common Internet technology called a “web beacon” (also known as a “pixel tag”, an “action tag”, or “clear GIF technology”). Web beacons help analyze the effectiveness of advertising campaigns and websites by measuring, for example, the number of visitors to a site or how many visitors clicked on key elements of a website.

Do Not Track (DNT) is a privacy preference that you can set in certain web browsers. Our websites may not recognize or respond to DNT signals, as the industry is currently working toward defining what DNT means and developing a common approach to responding to DNT signals. You can learn more about DNT here.

 

DATA ANALYTICS

We may use third-party analytics services (such as Google Analytics) on our online services to process information about your use of our online services, for example, knowing which webpage referred you to our services, understanding which pages you visited or usage trends, providing certain features to you, and assisting with fraud prevention. To learn more about Google’s privacy practices, please review the Google Privacy Policy. To prevent Google Analytics from using your information for analytics, you can install the Google Analytics Opt-Out Browser Add-on here.

 

INTEREST-BASED ADVERTISING

Some of our online services may integrate third-party advertising technologies that allow for the delivery of relevant content and advertising on non-Alexion services or that you use. The ads on third-party services may be based on various factors, such as the content of the page you are visiting, your searches, demographic data, and your activities on our websites and third-party services.

We neither have access to, nor does this Privacy Notice govern, the use of cookies or other tracking technologies that may be placed on your device to access the Services by non-affiliated third parties. To learn more about certain third-party trackers used for interest-based advertising, for example, through cross-device tracking, and to exercise certain choices regarding such technologies, please visit the Digital Advertising Alliance (DAA), Network Advertising Initiative (NAI)Digital Advertising Alliance-CanadaEuropean Interactive Digital Advertising Alliance, or your device settings if you have the DAA or other mobile app that allows you to control interest-based advertising on your device. We do not control these opt-out links or whether any particular company chooses to participate in these opt-out programs.

The opt-outs described at the links above are device- and browser-specific and may not work on all devices. If you clear cookies on your device or in your browser, you will have to go through the process of opting out again. If you choose to use any of these opt-out tools, this does not mean you will cease to see advertising. Rather, the ads you see will just not be based on your interests.

 

YOUR RIGHTS AND CHOICES

If you receive promotional communications from us, you may opt out of those communications by following the opt-out instructions in the communication (e.g., through an unsubscribe link or texting “STOP” in response to a text message). If you opt out of receiving promotional communications from us, we may still send you important administrative messages (e.g., updates about your account with us).

In addition, depending on the jurisdiction in which you are located or reside, you may have certain rights with regard to your Personal Data. We will honor your request in accordance with applicable laws and regulations, and we may verify your identity before responding to your request. Please note that the rights described below may be subject to limitations under applicable laws and regulations.

  • General Rights: To the extent provided for under applicable law, you may contact us at any time to ask what Personal Data we process about you, request that we correct inaccurate Personal Data, opt out of or suppress certain Personal Data processing, request deletion of your Personal Data, impose restrictions on our processing of your Personal Data, oppose to the processing of your personal data, request your personal data in a machine readable format, and you may withdraw your consent without any legal effect impacting you at any time by contacting us either at privacy@alexion.com or using the contact details from “How to contact us” of this Notice. Alexion, however, cannot guarantee that you will be able to continue certain activities or access in the event you withdraw your consent.
    • Automated decisions or analysis (where applicable)

      The way we analyze your personal information for the purposes of risk assessment, fraud prevention, e-recruiting and reporting may involve processing your personal information using software that is able to evaluate your personal aspects and predict risks or outcomes, which may be defined as profiling in some jurisdictions.
      We may make automated decisions about you:

      • Where such decisions are necessary for entering into a contract. For example, we may decide not to offer a role based on information about your educational history, professional qualifications and aptitude testing scores we have collected about them;
      • Where such decisions are required or authorized by law. For example, for fraud prevention purposes; or
      • Where you give your consent to us carrying out automated decision-making.

      Subject to local legal requirements and limitations, you can contact us to request further information about automated decision-making, object to our use of automated decision-making, or request an automated decision to be reviewed by a human being by sending their request at: Privacy@Alexion.com.

 

INTERNATIONAL TRANSFERS

Alexion is an international organization with affiliates and subsidiaries worldwide. Some of these have their registered offices in, or are located in, countries that do not have the same level of data protection as your country. We comply with legal requirements for cross-border data protection, for example, through the use of standard contractual clauses and, in some cases, other transfer mechanism permitted under applicable laws.

 

DATA SECURITY

Alexion has implemented privacy and security controls designed to help protect your Personal Data. Please note, however, that no security measures are 100% effective, and we cannot guarantee absolute security of your Personal Data. We encourage you to take steps to protect yourself, for example, by not sharing login credentials to your accounts, not sending us sensitive information using unsecure methods (e.g., via unencrypted email), and protecting your devices (e.g., with passwords).

 

DATA RETENTION

Alexion retains your Personal Data for as long as necessary for the purpose for which it was collected, unless a longer period is required to comply with applicable laws. Our retention periods vary depending on the purpose(s) for which your data was collected. Some of the criteria we use to assess appropriate retention periods include: (i) the nature of the Personal Data and the activities involved, (ii) when and for how long you interact with Alexion, and (iii) our legal obligations. To provide security and business continuity we make backups of certain data, which we may retain for longer than the original data.

 

PRIVACY STATEMENT FOR MINORS

We may process Personal Data about persons under the age of 18 (“Minors”) with the consent of their parent or guardian for the provision of certain services, such as patient support programs or research activities. We do not, however, knowingly solicit Personal Data from, or market or advertise to, Minors. If we become aware that we have collected Personal Data about a Minor without the consent of his/her parent or guardian, we will take reasonable steps to delete it in accordance with applicable legal requirements. Please contact us as described in the “How to Contact Us” section below to make us aware of Personal Data that we process about a Minor without consent.

 

THIRD-PARTY RESOURCES

We may provide you with links to or information about third-party resources. For example, we provide patients with information about patient advocacy groups, and we provide researchers with links to clinical trial registries. Please note that Alexion does not control the privacy policies or practices of such third parties, and we encourage you to review the privacy notices of the third parties with which you interact.

 

UPDATES TO THIS PRIVACY NOTICE

We may change this Privacy Notice from time to time, and we will post any changes to this Privacy Notice online. The date on which this notice was last updated is included at the end of this Privacy Notice. We may not notify you of any changes to this Privacy Notice, so you should check back occasionally to ensure that you are aware of the most recent version.

 

HOW TO CONTACT US

Alexion Pharmaceuticals, Inc., 121 Seaport Boulevard, Boston, Massachusetts, 02210 USA, and the Alexion affiliate in the country in which you are located or with which you interact are the “data controllers.” Our contact information is as follows:

For general questions or comments for which the individual would prefer to contact a DPO or about Alexion’s privacy practices from anyone anywhere in the world:

Privacy Counsel
Alexion Pharmaceuticals, Inc.
121 Seaport Boulevard
Boston, MA 02210 USA
By email: privacy@alexion.com

Privacy Counsel
Alexion Pharma GmbH
Neuhofstrasse 34
6340 Baar
Switzerland
By email: privacy@alexion.com

For general questions or comments for which the individual would prefer to contact a DPO: 

Alexion Pharma Germany GmbH (Germany only)
c/o Alexion DPO, activeMind AG
Potsdamer Str.
80802 München
GERMANY
By email: alexion@activemind.de

Alexion Brasil Legal Counsel/Data Protection Officer (DPO) (Brasil only)
Alexion Brasil (Morumbi Corporate Towers)
Av. Dr Chucri Zaidan, 1240,
15° andar, CEP 04711-130, Ed.
Morumbi Corporate – Golden Tower
Vila São Francisco, São Paulo – SP BRASIL
By email: PrivacidadeBrasil@alexion.com

Alexion and AstraZeneca have assigned a data protection officer responsible for overseeing compliance with EU and UK data protection laws, which you may contact at privacy@alexion.com, privacy@astrazeneca.com or by mail at the Global Data Protection Officer, AstraZeneca Middlewood Court, Silk Road, Macclesfield, Cheshire SK10 2NA, in case of any questions or concerns regarding the Processing of your Personal Data. 

You also have the right to lodge a complaint with the privacy or data protection regulator in your country of residence, if applicable. To find your relevant data protection regulator please check here.

Last updated on: August 2022

 

 

Alexion SUPPLEMENTAL PRIVACY NOTICE for California Residents

In this Supplemental Privacy Notice (“Supplemental Notice”), Alexion Pharmaceuticals, Inc. and its affiliates (collectively, “Alexion,” “we,” “us”) describe Alexion’s processing of Personal Data of consumers residing in California.

In this Supplemental Notice, you’ll learn about the following:

Scope of Supplemental Notice
Sources of Personal Data
Categories of Personal Data We Process and Disclose
Why We Process Your Personal Data
How We Disclose Your Personal Data
Your Rights and Choices
How to Contact Us
Updates to this Supplemental Notice
 

SCOPE OF SUPPLEMENTAL NOTICE

This Supplemental Notice applies solely to consumers residing in California (“you”), including patients, caregivers, healthcare professionals, and job applicants—as well as other individuals with whom we interact, such as visitors to our online services, service providers, business partners, speakers, and investors. This Supplemental Notice complements the Alexion Privacy Notice. Employees and contractors will receive a California Employee & Contingent/Consultant Worker, Privacy Notice as part of onboarding; this Supplemental Notice does not apply to employees and contractors, only job applicants.

 

SOURCES OF PERSONAL DATA

We collect Personal Data in a variety of ways, including:

  • Directly from you, such as through an online webform, when you register for an event, when you enroll in our Alexion programs, when you collaborate with us for research, when you submit a job application, when we communicate with each other, or when you otherwise provide us with your information (e.g., provide a business card).
  • From other people and organizations who are not you, such as healthcare professionals (“HCPs”), patients, references and referral sources, patient advocacy groups, study sites, and data aggregators and management systems.
  • From public sources, such as public databases (e.g., public transparency reporting records), public websites and search results, and publicly available social media pages (e.g., LinkedIn).
  • Automatically, such as through cookies or other technologies that provide us with information about your use of our online services.
 

CATEGORIES OF PERSONAL DATA WE PROCESS AND DISCLOSE

Depending on the nature of our interactions with you in the prior 12 months, we or our Vendors may have collected and processed the following categories of Personal Data about you. We may disclose this Personal Data to Vendors and Third Parties. “Vendor” means a service provider, contractor, or processor as those terms are defined in applicable laws. “Third Party” has the meanings afforded to it in applicable laws.

  • Identifiers, such as real name, postal address, email address, phone number, date of birth, Alexion-generated patient identification number, online identifiers, Internet Protocol (“IP”) address, and other similar identifiers and contact information. We also collect information, such as social security number and government issued identification number from job applicants.
  • Mental and physical characteristics, such as symptoms, level of fatigue, weight, slurred speech, and disability information.
  • Commercial information, such as products or services prescribed or used.
  • Internet or other electronic network activity information, such as browsing history, browser type, device type, operating system, dates and times you access our services, and other information about your interactions with our online services or advertisements.
  • Geolocation data, such as your zip code, if you provide such information to help us provide you with information about events in your area and/or work locations.
  • Audio or visual information, such as video recordings if you visit our locations or audio or video recordings of you describing your experience as a patient, caregiver, or HCP.
  • Professional or employment-related information. For HCPs, we collect data such as employer, title, specialty, employment history, awards and honors, membership in professional organizations, speaking engagements, and affiliations with patient advocacy organizations. For job applicants, we collect data selection and recruitment-related information, such as employment history, interview information and notes, employee termination information, and other appropriate information.
  • Education information, such as level of education attained, institutions attended, majors and areas of study, and grades.
  • Financial information, such as bank account information and amounts paid.
  • Demographic information, such as age and gender.
  • Opinions or statements, such as publicly available social media posts containing adverse events or product quality and opinions on us, our products and indications in public news reports.
  • Inferences, such as notes drawn from any of the Personal Data listed above to create a summary about, for example, an individual’s preferences and characteristics.
  • Sensitive Personal Data, which is a subset of Personal Data that is considered to be more sensitive (e.g., social security number, health information, precise geolocation, racial or ethnic origin, etc.). Sensitive Personal Data does not include aggregate information or information that has been de-identified or anonymized in accordance with applicable laws. For example, Alexion collects Sensitive Personal Data from patients for patient support purposes, such as diagnoses, symptoms, complications, therapies, outcomes, health plan, insurance policy number, barriers to access insurance information, dates of service; and Alexion may collect social security number, racial or ethnic origin, and immigration status from job applicants.

In addition to the above, we will collect any other information that you provide to us, such as stories about a doctor’s visit, questions related to our disease areas and therapies, and research interests.

 

WHY WE PROCESS YOUR PERSONAL DATA

We process all Categories of Personal Data for the following business and commercial purposes:

  • Operating and overseeing our business: for example, supporting quality and safety, enabling ethical and compliant business operations, conducting audits and investigations, providing our products and services, improving and developing new products and services, researching market trends, monitoring Vendors, and otherwise administering our business.
  • Understanding customer and stakeholder opinions, for example, identifying business opportunities and gathering and analyzing stakeholder needs, preferences, sentiments, and opinions on us, our products, and indications.
  • Communicating with you, for example, responding to your inquiries (including unsolicited requests for information about our indications or scientific information), providing you with information that we think may interest you, contacting you for your input, and maintaining records of our interactions with you.
  • Promoting our business and research, for example, carrying out marketing and sales activities, measuring the effectiveness of our promotional campaigns, and targeting advertisements on third-party services.
  • Personalizing our interactions with you, for example, understanding your professional and personal interests and adapting our services to your needs and preferences.
  • Protecting rights and interests, for example, protecting the health, safety, and security of our employees, patients, caregivers, HCPs, and the general public; enforcing our legal rights; responding to legal process; and pursuing remedies or otherwise taking steps to limit damages and liabilities.
  • Identifying potential talent, for example, reviewing information to identify candidates for our talent pipeline via online or public sources.
  • Engaging you to provide services on our behalf or as a business partner, for example, engaging with services providers that provide market research services or working with research collaborators.
  • Providing patient support services, for example, supporting you, assisting you with claims and authorizations, and connecting you with other resources or organizations.
  • Providing grants, sponsorships, and other opportunities, for example, offering our access to medicines programs and sponsoring and participating in research, events, and conferences.
  • Evaluate job candidates, for example, reviewing your job applications, talking to references, and reviewing information to identify candidates for our talent pipeline. For these purposes, we may use any of the types of Personal Data described above, for example, identifiers and contact information, professional or employment-related information, education information, and demographic information, medical certificate as required by local applicable employment law.
  • Share your story with others, for example, when we share patient stories to help our employees and others better understand our patients and their journeys.
  • As required by law, for example monitoring pharmacovigilance and product safety, quality, and complaints; complying with transparency requirements; monitoring fraud and abuse; and responding to legal process.

Alexion uses or discloses Sensitive Personal Data for the following purposes only: providing the products and services you request, as well as improving those offerings; operating and overseeing our business; protecting rights and interests; short-term transient uses; and for purposes that do not infer characteristics about consumers. Alexion uses or discloses Sensitive Personal Data for all the purposes discussed above.

 

HOW WE DISCLOSE YOUR PERSONAL DATA

We may disclose your Personal Data as follows:

  • Vendors and Third Parties may receive the information we collect directly from you, other people and organizations, public sources, and automatically. We may disclose your Personal Data to vendors who work on our behalf to provide certain services, for example, entities that provide us with research services, data storage, data analysis and processing, distribution, patient support, IT and data security, and legal services. We also may disclose your data to our business partners, for example, researchers with whom we collaborate, companies with whom we co-develop a therapy, companies with whom we co-promote a product, or third-party companies managing our in-countries or distribution operations.
  • Our affiliates and subsidiaries (including both the Alexion and AstraZeneca groups of companies) may receive the information we collect directly from you, other people and organizations, public sources, and automatically. For business purposes, we may disclose your Personal Data to, for example, current and future companies within the Alexion family of companies, so we can improve our offerings.
  • We may disclose all of the information we collect in connection with a business transfer or sale, for example, as part of a sale, assignment, or transfer of an Alexion business or asset, or acquisition of or merger with another entity.
  • We also may disclose any of the information we collect in response to requests from government or law enforcement agencies or where required or permitted by applicable laws, court orders, or government regulations, for example, in response to a subpoena or regulatory inquiry.
  • We may disclose all of the information we collect to protect rights and interests, for example, when needed for corporate audits, to investigate or respond to a complaint or threat, or to exercise our legal rights.
  • We may disclose any of the information we collect with your consent, for example, when you agree that we can share your Personal Data with an HCP.

While we do not sell Personal Data as the term “sell” is traditionally understood, our use of tracking technologies may nevertheless be considered a “sale” or “sharing” under California law. In the prior 12 months since this Supplemental Notice took effect, for commercial purposes, we have shared the following categories of Personal Data for cross-context behavioral advertising: “Identifiers” and “Internet or other electronic network activity information”. We have shared such Personal Data for these purposes with advertisers and marketing partners, data analytics providers, and social media networks. You have the right to opt out of such “sale” or “sharing” as described under Your Rights and Choices below.

 

YOUR RIGHTS AND CHOICES

California consumers have certain rights with respect to their Personal Data. You may exercise the rights applicable to you by emailing us at privacy@alexion.com or calling us at +1-844-935-1326. Please note that the rights described below may be subject to limitations under applicable laws and regulations.

Verification of Request: To make your request, you must provide us with your first and last name, email address, city and state of residence, and which of the right(s) described below you are intending to exercise. We will verify your request by comparing the information that you provide as part of your request with the information (if any) that we have about you in identifiable form. We cannot fulfill any requests that are not verified.


Data Subject Rights: You may be entitled, in accordance with applicable law, to request:

  • Access to the specific pieces of Personal Data we have about you or more information about our data processing practices.
  • Deletion of Personal Data that we collected from you.
  • Correction of any inaccurate Personal Data we maintain about you.
  • Opt-Out of the Sale or Sharing of Personal Data for Purposes of Cross-context Behavioral Advertising: Alexion may share Personal Data with third parties to conduct cross-context behavioral advertising. In California, this could be considered a sale or sharing of Personal Data, and residents of California have the right to opt out. You can opt out by clicking the following button:

Important information to know about submitting a request: (i) you will need to submit a separate request for each browser and device you use to access Alexion websites; (ii) if you clear cookies, you will need to submit your request again; (iii) exercising this right does not impact Alexion’s ability to send you promotional communications if you previously registered to receive such communications through an Alexion website or service; (iv) communicating your do-not-sell/share preference across our websites relies on your browser supporting cross-site transmissions; and (v) if you would like to opt out of the sharing of your contact information with social media providers, you should email privacy@alexion.com.

Non-Discrimination: We will not discriminate against you for exercising your data subject rights, although some of the functionality and features available on the Service may change or no longer be available to you. Any difference in the Services are related to the value provided.

Use of an Authorized Agent: You may designate an authorized agent to make a request on your behalf by drafting, signing, and authenticating a letter that makes clear (i) the identity of your agent and (ii) the purposes for which you are appointing the agent. If you are an authorized agent, you must provide us with the information described above about the consumer on whose behalf you are acting as an agent, as well as your own first and last name and email address, and a letter that has been signed by the consumer appointing you as an agent. We may require that you verify your identity to us or confirm with us that you provided your agent with permission to submit the request. In some instances, we may decline to honor your request if an exception applies under applicable law. We will respond to your request consistent with applicable law.

 

HOW TO CONTACT US

If you have any questions, comments, requests, or concerns related to this Supplemental Notice, Alexion’s US privacy practices, or how to access this policy in another format, please contact Alexion at:

Alexion Global Headquarters
121 Seaport Blvd., Boston, MA 02210
844-935-1326
privacy@alexion.com

 

UPDATES TO THIS SUPPLEMENTAL PRIVACY NOTICE

This Supplemental Notice was last updated in June 2023. We may change this Supplemental Notice from time to time, and we will post any changes to this Supplemental Notice online. We may not notify you of any changes to this Supplemental Notice, so you should check back occasionally to ensure that you are aware of the most recent version.

 

GLOBAL PRIVACY PORTAL

Welcome to the Alexion Global Privacy Portal, where you can access information about our global privacy and data protection program, the policies that govern our online practices, privacy statements that explain how we use and protect information about healthcare professionals, and how to contact us with privacy-related questions and concerns.

Our privacy and data protection commitment

At Alexion, our mission is to serve patients and families affected by rare diseases by delivering innovative, life-changing therapies. We believe that protecting information about patients and the healthcare professionals who treat them is a key part of delivering on this mission. Alexion is also committed to satisfying our obligations to protect the personal data of our employees and third parties, and to upholding the privacy expectations of all individuals with whom we engage globally.

Have a privacy question or concern?

Contact us at:

Alexion Global Headquarters

121 Seaport Blvd

Boston, MA 02210

475-230-2596

privacy@alexion.com

 

Read Our Online Privacy Statements for:

Alexion.com

Alexionpharma.jp


 

Read Our Privacy Commitment for Healthcare Professionals:

Algeria

Austria

Australia

Belgium (Dutch)

Belgium (French)

Bosnia

Brazil (Portuguese)

Canada (English)

Canada (French)

Colombia

Croatia

Cyprus

Czech Republic

Denmark

Finland

France

Germany

Greece

Hungary

Ireland

Italy

Italy (Transfer of Value DPN)

Luxembourg

Middle East (English)

Monaco

Norway

The Netherlands

Poland

Portugal

Russia

Serbia

Slovakia

Slovenia

Spain

Sweden

Switzerland (German)

Switzerland (French)

Switzerland (Italian)

Turkey

UK

Last updated: June 2023

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