REAL STORIES
Living Their Lives Every Day
We know that beginning with their first symptoms through an often long path to diagnosis and treatment, people living with a rare disease have to navigate a sobering new normal while managing other life priorities.
But rare disease patients persevere. With our help, they’re reconnecting, moving forward, and making every day of their life what they want it to be.

CHELSEY
LIVING WITH NMOSD

ALBIE
LIVING WITH LAL-D

DONNAN
LIVING WITH aHUS

JOE
LIVING WITH PNH

JULIA
LIVING WITH aHUS

ROBERTA
LIVING WITH gMG

TANNER
LIVING WITH HPP

VICTOR
LIVING WITH PNH

ERICA
LIVING WITH aHUS

JILL
LIVING WITH aHUS

JUSTICE
LIVING WITH aHUS

ADELYN
LIVING WITH HPP

EVIE
LIVING WITH HPP

MAUREEN & LAUREN
LIVING WITH LAL-D

TRENDY FAMILY
LIVING WITH LAL-D

TRISTAN
LIVING WITH LAL-D

BILL
LIVING WITH PNH

RUTHIE
LIVING WITH PNH

LISA
LIVING WITH PNH