![Tanner, diagnosed with HPP at 4 days old, playing on a playground](/-/media/alexion_comredesign/images/realstories/hpp/tanner/tanner-02-s.jpg?rev=9fd0fc4deaf74845a3470a8baba1b98f?mw=375 375w,
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TANNER
LIVING WITH HPP
REAL STORIES
Real Stories of Living With HPP
![Adelyn, diagnosed with HPP at 2 days old](/-/media/alexion_comredesign/images/realstories/hpp/adelyn/adelyn-01-r.jpg?rev=f189b1a3a8774a00949c8def6c4dfcf1?mw=375 375w,
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Adelyn
Diagnosed with HPP at 2 days old
Adelyn’s mother had a healthy pregnancy, but when Adelyn took her first breath, her entire chest cavity collapsed. She turned blue in color and her limbs were going the wrong way.
HEAR HER STORY![Evie, diagnosed with HPP at 2 weeks old, playing on a playground](/-/media/alexion_comredesign/images/realstories/hpp/evie/evie-01-r.jpg?rev=923e84bdc1764da69982ddae6a29e0f5?mw=375 375w,
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Evie
Diagnosed with HPP at 2 weeks old
When an ultrasound revealed that Evie had extremely fragile and transparent bones, doctors told expectant parents John and Lindsey that it was not likely their baby girl would live long after birth.
HEAR HER STORY![Tanner, diagnosed with HPP at 4 days old, with a stuffed animal](/-/media/alexion_comredesign/images/realstories/hpp/tanner/tanner-01-r.jpg?rev=ba4b77113f584753979533caaffd2564?mw=375 375w,
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Tanner
Diagnosed with HPP at 4 days old
When Tanner was born, his mother, René, did not suspect anything was wrong with him. Then his doctors noticed that his wrists were retracting and he had an unusual amount of cartilage.
HEAR HIS STORY
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